Consistent
with the national averages, 80 percent of the group's hospice patients
are helped at their homes. "Home" is considered the person's
residence, which can include a nursing home or other care facility. Portsbridge
accepts Medicare and Medicaid patients, as well as those with private
insurance, including HMO's. The group also accepts charitable donations
through its nonprofit organization.
Wilson notes,
"The concept of a hospice is frequently misunderstood." In fact,
hospice is not a place, it is a concept. The person is treated, not the
disease, and quality of life is emphasized, not the duration of life.
Hospice care is typically available to those who have six months or less
to live.
Portsbridge
Hospice's vision statement explains the concept in part: "To impart
dignity to our patients and their loved ones by providing patient care
of the highest quality." The group provides support for the patient
physically, emotionally and spiritually. They also work closely with friends
and relatives, providing much needed support as they deal with grief,
stress and other issues.
Wilson summed
up her thoughts regarding hospice by saying, "We value life an believe
hospice care is a means to address end of life issues with dignity, compassion
and expertise."
Educational
programs, grief counseling and community outreach are offered to the public
at no cost. Cynthia Brasswell, director of the Portsbridge Community Education
Department, is passionate about hospice. She said, "I can't stop
talking about it."
She and Wilson
gave a brief explanation of the "circle of care" utilized by
the hospice in caring for patients and their families. Initially, a registered
nurse visits with the individual and their family members or whoever else
the patient would like involved. The nurse asks questions and provides
information and facts to them, letting them know "the goal is not
to cure, but to make them feel the best they can." The patient is
asked what they would do if they were well - and then, per Wilson, "we
try to help them do it." Afterwards, a team of caregivers is pulled
together and a care plan is developed.
The team includes
a physician medical director, social worker, bereavement counselor, Chaplain,
home care aides, a registered nurse and volunteers. The patient's physician
is also involved and is asked to approve the plan of care developed by
the interdisciplinary team.
The team looks
at all the needs of the patient and the family when developing the plan.
Wilson shared that "about 95 percent want to be able to stay at home
as long as they will not be a burden to their family."
Brasswell said,
"We tailor each care plan to the individual, making sure each persons
needs are met." Wilson told of some things that had been provided
to patients. One wanted a 60-inch TV in the room, while another asked
for a drafting table so the grandfather could draft a book for his grandchildren.
One woman wanted
to be baptized, and a pool was purchased at Wal-mart and set up in the
room. Wilson said that was the easy part. "We couldn't figure out
how to get the water out afterwards."
She continued,
"The end of life is not a time to refuse people anything they want."
Some common
issues the team helps patients with includes issues with family members,
estrangement from their church, financial concerns, pain management, medical
needs and answers to questions. Options are given regarding the many decisions
that the individual and their families may need to make such as who will
have decision making power in later stages if needed and what to do if
they are no longer able to eat. Legal issues are addressed if they have
not been previously taken care of.
In addition
to emotional support, practical assistance is given to the family regarding
funeral planning, legal issues, death pronouncements and other related
areas.
A chaplain
is available to "tap into whatever spiritual recourses people need
to help them get through," per Wilson.
Bereavement
counseling is provided to family members for up to a year after the patient's
death at no charge. As Brasswell noted, "We get paid, only in a different
way."
Eunice Farris,
RN, BSN, sums up the attitude of most, if not all, of the staff at Portsbridge
regarding their commitment, "It's a gift, a ministry. And it is a
continuous learning experience."
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