There are many
myths or erroneous beliefs regarding hospice. The number one myth is that
hospice is a place. Hospice takes place wherever there is a need, typically
in the patient's home.
Hospice includes
medical care with a strong emphasis on pain management and symptom relief.
The emotional, social, financial and spiritual needs of patients and their
families and friends are also an integral part of the support offered
with hospice care.
Another myth
believed by many is that hospice is only for those with cancer. Roughly
20 percent of hospice patients in the United States have been diagnosed
with illnesses other than cancer, such as emphysema, Alzheimer's disease,
diabetes, kidney failure, cardiovascular and neuromuscular diseases like
Lou Gehrig's disease. A growing number of patients suffer from HIV/AIDS.
Some believe
that hospice is only for those who have accepted their death. Hospice
caregivers are adept at gently helping individuals some to terms with
their death at their own speed, in their own way.
According to
Portsbridge administrator Mary Jo Wilson, "We go out of our way to
help people live until they die. We know how to help and support the patient
through the process. We empower people and give them the knowledge to
be able to make choices about their care."
A common myth
is the belief that hospice is for people who do not need a high level
of medical care. In fact, the majority of hospices are Medicare-certified
which requires that they have experienced medical and nursing personnel.
Hospice care
is not expensive as many believe. Most people who use hospice are entitled
to Medicare hospice benefits or the care is covered by private insurance.
Some hospices are 100 percent nonprofit and offer their services at no
charge, while others accept insurance and do not require a deductible.
Many, such as Portsbridge, state they will not turn a patient away even
if he or she is unable to pay.
Another popular
misconception is that hospice is only for the elderly. While the majority
of hospice patients are older, hospice is for those of all ages. In 1996
Southwest Christian Hospice in south Fulton expanded its scope of service
to include children with life-threatening diseases and those with severe
disabilities. In the spring of this year ground was broken on a new 12-bed
wing addition to be called "Hope House" which will serve the
needs of children exclusively.
Hospice is
not crisis care or crisis intervention. Hospice patients are usually referred
A team of caregivers including nurses, physicians, social workers, spiritual
advisors, counselors and volunteers works with the patient and their families
to develop individualized care plans designed to ease physical and emotional
pain.
The word "hospice"
comes from the Latin root "hospes," from which our English words,
"hospital," "hospitality," and "hotel" is
derived. The spirit of the word "hospice" is reflected in the
Latin root word that means both "host" and "guest."
The first hospice
was established in the United States in New Haven, Conn., in 1974.
Most medical
treatments needed to make a terminally ill patient physically comfortable
can be provided in the home.
There are over
2,300 hospices in the United States hospice providers are dedicated to
the notion that the end of life is one of life's stages and that it should
be lived fully and peacefully with the support of friends and family.
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