A little over four years ago,
it became obvious that my father was dying.
He had been battling cancer
for two years, had several surgeries, radiation treatment, chemotherapy,
and had been fighting a heroic battle. However, the doctors finally sat
down with our family and shared the hard truth that he was not getting
better, was, in fact, getting worse, and would not recover.
One medical person had suggested
that my mother, who was ill herself, consider a nursing home for Dad's
last months. My mother wouldn't hear of it. "I will not let Bill
die in a nursing home surrounded by strangers. I'll take him home before
I do that."
On one of my visits to Tennessee,
Dad's doctor suggested that Mom consider in-home hospice care. I was unfamiliar
with that type of hospice care, but was very aware of excellent residential
hospice facilities in the Atlanta area. I assumed that a hospice was a
place where someone went in order to die. I was about to learn something
new.
I discovered that hospice care
is recommended when a patient has a terminal illness with a life expectancy
of six months or less; when the patient no longer seeks curative treatment;
and when the patient desires to shift the attention and focus to family
and personal issues and to measures of comfort.
I discovered that there are
two primary goals of hospice care. The first is that the patient be free
of pain and other uncomfortable symptoms (while remaining as alert as
possible). The second goal is the successful bereavement of the family
and loved ones. The goal is to help, not only the patient, but the grieving
family.
In in-home hospice care, the
family becomes the primary source of care with the hospice staff (which
includes a medical director, nurses, aids, social workers, ministers,
therapists, volunteers, and others) supporting the family and providing
the treatment.
In other words, the terminally
ill patient goes home to die, surrounded by friends and family, and lives
out his or her last days pain-free and alert. All the while, nurses, social
workers, chaplains, volunteers and others, visit the home, care for the
patient, and assist the family to make this most difficult of transitions.
My mother agreed to in-home
hospice care and Dad went home. The hospice folks, who are generally paid
medicine in short, everything needed.
I also discovered that members
of a hospice staff are a special breed of people. Many, like Karen Hennessy,
R. N., of Countryside Hospice in Newnan, Ga., have, themselves, lost a
loved one to an illness and have experienced hospice care. In Karen's
situation, her husband, Tom, died peacefully at home with Karen at his
side and other members of his family within a few minutes of the house.
Now, Karen does hospice admissions, fully understanding the compassion
and sensitivity needed during this agonizing process.
Father David Jones served as
a volunteer chaplain for Olsten Hospice in Fayetteville. Father Jones
took communion to the sick, prayed and read scriptures, and, at times,
would bring his guitar and softly sing songs of worship as he brought
the Church to those who were unable to leave their bed.
Other volunteers have taken
ill patients fishing or have played chess or checkers with those who cannot
leave the house. Sometimes, other volunteers just sit with the patient
while the spouse goes to the grocery store or simply takes a long, much
needed, solitary walk.
My father would die the Thursday
after the second Sunday in September 1996. His last days were spent in
the house my family had occupied for some 40 years. He ate Mom's cooking,
had visits from family members, and had the gentle and loving care of
my mother.
Mom wasn't certain she was
up to the task, but, with the help of hospice staff, she did a marvelous
job. My brother, Wayne, also came to the house nearly every day and assisted
Mom in taking care of Dad.
My father originally had lung
cancer that eventually moved to the brain. His last days were pain-free
and spent in familiar surroundings. When he died, the hospice staff came
to the funeral and cried just like they were members of the family.
Mom couldn't say enough good
things about the people from the hospice who came to see Dad. In fact,
they would follow up with Mom for the next year making sure she would
be okay.
After the funeral was over
and my father was buried, my mom looked at me and said, "I guess
I've done all I can. It's time to go home." I don't think she could
have made that statement if she hadn't brought Dad home. Hospice made
that possible.
During this November, which
is National Hospice Month, I'd like to thank all those people who make
the last days of people like my father times of peace and joy. Dad died
with dignity, free from pain, surrounded by people who loved him. Thank
God for that.
Thank God for hospice care.
Thank God for that special breed of people who visit the sick and comfort
the dying and their families.
[Father David Epps is rector
of Christ the King Charismatic Episcopal Church in the south metro area
of Atlanta. He may be contacted at [email protected], or at www.ChristTheKingCEC.com.]






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