The daily
demands of caring for fragile, severely ill children can
take a tremendous toll on the care giving parents and
family members.
Hope House
is a home-based care program that provides time out for
the families of these special children.
year, the dream of building a respite care center for
dozens of children afflicted with life threatening
conditions who live in Fayette and 11 neighboring
counties will become a reality.
Mary Lou
Marshall, operations manager for Hope House, estimated
the cost of building the center, which will be next to
Southwest Christian Hospice in Union City, to be about
$1.2 million. "Presently, there is no respite care
here for children," Marshall said. There is one room
allocated for this purpose at the hospice, but the
current method of service is for staff members and
volunteers to stay with the child in his home.
Plans call
for an eight-bedroom wing complete with a family lounge,
two parent's efficiency rooms, game room, computer and
music room, library, multisensory room, hydrotherapy
pool, spa bath and showers, gardens, outdoor play area
and chapel. Staffing will include a care manager and
nursing staff, pediatric nurses, nursing assistants, a
social worker, physiotherapist, a chaplain and support
staff.
Five years
ago, Myrna Bond, director of nursing at Southwest
Christian Hospice, attended an international conference
on children's hospice care in Washington, D.C. She
returned home with a new sense of joy and dedication to
the goal of caring for children with life threatening
conditions.
"As I
listened to parents report disturbed sleep, fatigue and
burnout, I realized how much they needed our supportive
care," she said. "Jesus let us know how
important children are to Him when He said, `Suffer the
little children to come unto me, and forbid them not, for
of such is the Kingdom of Heaven' (Mark 10:14).
"Many
of these children have 24-hour care demands and can never
be left alone," Bond added. "I started thinking
how wonderful it would be if we would begin providing
inpatient respite care for these children and these
parents.
"The
parents could stay and assist with care until they felt
comfortable leaving them with us," she said.
"The children and the parents could benefit from
assistance with physical care, as well as the spiritual
encouragement we provide," she added.
Respite
care could be a few days, or as long as two weeks on any
one visit, she said.
This is the
goal of Hope House, and it will be met through donations
from churches, corporate sponsors and individuals.
Volunteers
provide an enormous amount of support for Hope House,
from caring for the children to offering little extras,
such as Easter baskets.
When
Jennifer Cole of Tyrone signed on and trained as a
volunteer, she was asked by Marshall to coordinate the
holiday basket project. She was linked up with Buddy and
Janice Duncan of Wildwood flowers and gifts in
Fayetteville and the result was 17 pastel-ribboned
baskets customized for each child.
The process
of shopping for the toys and books for the baskets and
the assembly took some interesting twists and turns.
"The week I met with Janice, I received a check for
$300 from a friend named Renee Namaste of Costa Mesa,
Calif.," Cole said. "She said she was leaving
her legacy now before she dies." Although Cole
discovered her old friend was not ill, she wanted to do
something special. She decided to use the found cash for
unique and personal gifts to fill the baskets.
In the
meantime, Duncan was hit with the news that she must
undergo surgery for breast cancer. She and her husband
assembled all the baskets prior to her hospital stay.
"It was very important to me to get it done,"
Duncan said, "and we really enjoyed doing it."
Duncan said
Thursday that she's "doing great" and is back
at work. The baskets will be delivered to the Hope House
children before Easter weekend.
For
information about Hope House and its volunteer program,
phone 770-969-8354.







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