When someone is first told
he or she has cancer, the reactions are as varied as the
individuals and types of cancer.
Anger, denial, disbelief,
shock, fear, embarrassment and confusion may all be
experienced. Norma Johnson was told she had colon cancer
via phone while at work - on her wedding anniversary. She
said, "I went into the bathroom and cried." She
and her husband followed through with their get-away
plans for the weekend, but she says, "I cried most
of the time and wouldn't talk about it at first."
Regardless of their initial
reaction, at some point most begin to devour every piece
of literature and information they can find on cancer.
They talk to survivors.
They go to the Internet and scan through the many
thousands of cancer related web sites.
The American Cancer Society
is usually the first source highly recommended by
survivors. The ACS has a comprehensive gathering of
information covering every aspect of cancer. The society
also has a 24-hour information line, 1-800-ACS-2345.
Shirley Bowman, whose
husband had cancer and whose daughter-in-law is currently
battling cancer, said, "You can't do enough to
educate yourself. It's your body - take charge and
find out everything that's out there."
A number of cancer
survivors cautioned against taking every source as the
"gospel." Robyn Smith, breast cancer survivor,
noted, "Some things are outdated. They are
progressing so fast when dealing with cancer that you
have to be careful when assessing the information."
Prior to beginning to
research treatment options and other data, it is
important to have a name for the specific cancer. A
diagnosis of "skin cancer" is too broad for
most research purposes. Carcinoma, adenocarcinoma,
sarcoma are three types of skin cancer. However, each of
these can also be broken down further.
As an example, sarcomas
cancers occur in connective tissue, bone, muscles and
other areas. The treatment options for each of these
could be different.
Talking with other
survivors can make the research process go faster. Many
will have already explored options and be able to give
guidance. They can also tell you what has worked for them
and the potential side effects associated with some
treatments.
The following listing is by
no means complete. It includes a listing of information
resources for understanding cancer, keeping abreast of
statistical data, current proven and alternative
treatments and general research.
- American Cancer Society,
www.cancer.org; 404-816-4994 or 1-800-ACS-2345. The ACS
is the largest source of private, not-for-profit cancer
research funds in the U.S., second only to the federal
government in total dollars spent.
- CancerGuide by Steve
Dunn: www.cancerguide.org
- National Cancer
Institute: www.nci.nih.gov
- Cancer Information
Service: cis.nci.nih.gov; 1-800-4-Cancer A free public
service of the National Cancer Institute; information and
education network.
- National Center for
Complementary and Alternative Medicine: altmed.od.nih.gov
- University of Texas
Center for Alternative Medicine Research in Cancer: www.sph.uth.tmc.edu:8052/utcam
- American Botanical
Council: www.herbalgram.org
- Pharmaceutical
Information Network: pharminfo.com
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